- Standing frame (to be strapped in to for an hour or so a day to give her good posture and hamstring stretch)
- Specialist Davros seat with torso support (to do stuff like cooking or sitting at the dining table)
- Small chair with torso support (to sit at the little table)
- Peapod beanbag with torso support (to chill out in when watching TV)
- Bugzi electric wheelchair
- Manual buggy/wheelchair
- Inflatable 'paddling pool' to go around the bed (so she doesn't fall out)
- Electric hospital bed that goes up and down (to save our backs and take the other kit)
- Sleep system, to go on the bed and provide support as she sleeps
- Suction pump (in case she chokes on either food or her own secretions)
- Kaye Walker walking frame (so she can walk)
- Toilet frame
- Electric bath seat (goes up and down and gives her seated support in the bath)
- Bathroom step
- General purpose step
- Ramp out in to the conservatory
- Three months supply of nappies (delivered quarterly)
- A gross of Fortini Multifibre feeds, syringes and tubes (delivered monthly)
- Spare mini button that needs to go everywhere with her in case her button comes out and she has to go to A&E
- Carrot car seat (to use when she is going somewhere in a non-wheelchair-accessible vehicle)

I am really hoping that Make A Wish come through before the end of the school holidays and sort us out a break somewhere.
With babysitting.
Whatever space you have, you'll fill, but there is a viable minimum - that is an awful lot of kit. At the least, I'm sure you could do with a bigger bathroom. And it's so necessary to get away from having everything in your face all the time, but I suppose that's hardly possible.
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