Wednesday, 16 April 2008

update


Just a quick update. As of the weekend, the hospital were talking about Pa coming out this week.

However, yesterday it transpired that he has a problem swallowing. This is not going to get any better and is the reason that he has a chest infection - bits of food and liquid are getting down in to his lungs. The options are to continue as he is, feeding him normally and accepting the probability of continuing chest infections running him down; or for him to have a feeding tube inserted in to his nose.

Either way, he is not going to be going home - they are talking about a Community Hospital or a Nursing Home.

We have some very difficult decisions to make as a family.

I am a slightly better. The consultant has swapped me back on to my original medication as apparently the risk of foetal deformity is very small and it has become clear to everyone over the last ten days that the new thing they have put me on isn't helping me very much. They are also going to fit me with some kind of scary corset-type thing for the SPD.

These all seem very minor considerations at the moment.

I don't want to stop blogging, but I do seem to be writing a catalogue of woes at the moment, so excuse me if I become a bit 'gappy'.

We should hear about Pa's test results later today and we will then make a decision about whether we need to go back to Somerset.

13 comments:

  1. Aww hon.

    I can appreciate the difficult decisions facing you given what happened to my in-laws over the last couple of years.

    I know there's all kinds of horror stories about nursing homes but I know from experience that some of them are run by wonderful, caring, hard-working people. I know it's easy for me to say but don't feel guilty at Pa moving into somewhere where they can give him quality care - unless we're very lucky there'll come a time when a large percentage of us need such care as we get older.

    Pleased to hear you're slightly better. If you ever need a shoulder.....

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  2. Aww hon.

    I can appreciate the difficult decisions facing you given what happened to my in-laws over the last couple of years.

    I know there's all kinds of horror stories about nursing homes but I know from experience that some of them are run by wonderful, caring, hard-working people. I know it's easy for me to say but don't feel guilty at Pa moving into somewhere where they can give him quality care - unless we're very lucky there'll come a time when a large percentage of us need such care as we get older.

    Pleased to hear you're slightly better. If you ever need a shoulder.....

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  3. "Hugs" to you Ally. Hang in there.

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  4. "Hugs" to you Ally. Hang in there.

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  5. What are friends for if not to share the bad times as well as the good. Hope things work out well for you. Flick xx

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  6. Oh, Ally. I wish there were something I could do to help.

    I have grown so fond of Pa through your blog. You have made him so real to us and now we are praying for him not just because we love you, but because we love Pa, as well.

    Don't mean to get sappy about it, but it is amazing how connected you can feel to people you've never physically met.

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  7. Oh, Ally. I wish there were something I could do to help.

    I have grown so fond of Pa through your blog. You have made him so real to us and now we are praying for him not just because we love you, but because we love Pa, as well.

    Don't mean to get sappy about it, but it is amazing how connected you can feel to people you've never physically met.

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  8. huge hugs for the difficult decision making part, my ex-husband is a nurse in an nursing home and as a husband/father he is definitely in the realms of 'shit' but as a nurse he is absolutely wonderful and to me proves how lovely nurses and nursing homes can be.(in fact he currently works in the home that the muffin's great grandmother lives in and she is happy as pie there)

    glad about the meds, you need them to work right now, you don't need to be struggling due to that and having more crap piled on, it's hard enough to deal with everything without pnd rearing its sometimes incredibly ugly head...

    corsets are wonderful things, as soon as you put them on the relief is enormous, even if it doesn't take away the pain completely the amount it does is an absolute dream come true!

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  9. huge hugs for the difficult decision making part, my ex-husband is a nurse in an nursing home and as a husband/father he is definitely in the realms of 'shit' but as a nurse he is absolutely wonderful and to me proves how lovely nurses and nursing homes can be.(in fact he currently works in the home that the muffin's great grandmother lives in and she is happy as pie there)

    glad about the meds, you need them to work right now, you don't need to be struggling due to that and having more crap piled on, it's hard enough to deal with everything without pnd rearing its sometimes incredibly ugly head...

    corsets are wonderful things, as soon as you put them on the relief is enormous, even if it doesn't take away the pain completely the amount it does is an absolute dream come true!

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  10. [[hugs]] I so hope things look up for you soon. Decisions about family care are so hard. :(

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  11. Oh, shit. What a time you are having - and I haven't been in here for sooo long!
    And, you are having another baby! How Wonderful! The spd thing is awful for you - have you been on any good sites? I'll ask my daughter, she had/has this, thankfully so did our GP, so at least she got some understanding and helpful, help.
    You had a lot of the 'weird' thoughts with Leo, didn't you? And, they were going to look at whether you could get your meds via patch, weren't they?
    Hang in there, honey. It will be okay. And, so will pa.
    Big Hugs, K xx

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  12. Oh, shit. What a time you are having - and I haven't been in here for sooo long!
    And, you are having another baby! How Wonderful! The spd thing is awful for you - have you been on any good sites? I'll ask my daughter, she had/has this, thankfully so did our GP, so at least she got some understanding and helpful, help.
    You had a lot of the 'weird' thoughts with Leo, didn't you? And, they were going to look at whether you could get your meds via patch, weren't they?
    Hang in there, honey. It will be okay. And, so will pa.
    Big Hugs, K xx

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